ironbob

I will lift Kenna up each day to our Lord and savior Jesus Christ that he will bring a complete healing to her.


God bless
bob

Kenna is the granddaughter of one of my high school classmates. Kenna was born without an immune system and a year ago she underwent a bone marrow transplant to get her immune system going. There were many complications and she has been fighting for her life ever since. She has some very serious problems right now and desperately needs all the prayers she can get. Below is the latest care page post from her mom, Kimber.

Woody

Beyond every millisecond of existence is an infinite miracle of chance.
Posted 1 hour ago

Again, sorry about the lack of an update, things have been stressful and busy and honestly I wasn’t really in the mood to write anything. Thanks for understanding.

Kenna is tough, we all know that. She has fought so hard for so long and she just keeps on fighting. Once again she is in the fight of her life and so are we. We headed to PICU for monitoring and to set up a regimen that would allow her to be followed now that we are back on the BMT unit. It sounds strange to say it that way but certain things have to be done in a particular order. To start some medications patients have to be very closely monitored to make sure things go the way they are supposed to. So that’s what we did…we got some medicines started. While we were in there we got to hear the viewpoints of various doctors and listen to them tell us what they thought...There are some amazing doctors over there, truly, but the way they present the situation is less than optimistic. Brett and I were stunned at the lack of optimism there actually, and it came across so different than the plan that BMT had laid out for us. Beyond all that, Kenna is still in need of some serious prayers.

An overall view of Kenna:
BMT – done, successful
GVH – had it, beat it
Adeno – got it, working on it
BK – got it, working on it (new med involved)
Kidneys – taking a hit from the cidofovir, still functioning but wasting bi-carb
Lungs – functioning, need exercise and healing, these are the biggest issue, we need her lungs to work.
pH/co2 – a plan in place, but need kidneys and lungs to heal and then this can recover some.

It’s been one year tomorrow that Kenna received her cells. I didn’t picture that I’d be writing our one year anniversary update from Children’s though. I thought we’d be home having a party of our own and really having a good time! We’ll still be having a party…that’s for sure. We have support coming, Kenna needs it, Brett and I need it, too. She really needs a pick-me-up for sure. As she is now, with some lung damage where it is she can still have a very long, full life. People live with lungs in far worse shape than hers are right now, but this, coupled with the viruses that she is fighting off and her kidneys wasting bi-carb she is having to compensate with breathing and she is unable to do that as well as she needs to. This is where ‘the plan’ comes into place…acetate has been added to her tpn and she will get bi-carb boluses as needed, she’s only required two so far this week I think. Best case scenario: Kenna recovers and is free to live a long, full, enjoyable life. She may not be a marathon runner or an Olympic swimmer, but she’ll be able to enjoy life to the fullest and be happy. This is entirely possible. It is also entirely possible that her condition will get worse and she won’t make it. We need everything to go right for her with no more bumps in the road or setbacks either. We ask that if you can’t decide what to pray for or you just don’t know, you can ask that Kenna’s pH and co2 regulate, pray that her kidneys hold up and her lungs heal.

We are blessed to have so many people who care so much about us; it is truly a wonderful thing. We hope and pray that someday we can share only good news with you all; won’t that be a special day? Please keep Kenna in your prayers; she needs them so very much. Please take the time today (and everyday) to give your kids a good hug, hold then a few seconds more and tell them how much you love them.

God Bless
Heads Up Hearts Strong
~Kimber

thanks for the review on the forge very good. just getting back into knife making after 4 years away and thinking of replacing my old home made forge . I saw the diamondback on the internet and wondered how they would work, thanks for giveing us a look.
God bless